Alzheimer's Caregiver Support

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Caregiving: The Grief Process: Part 2 (of 6)

Posted by Alzheimer's Caregiver Support on August 21, 2017 at 12:00 PM

An excerpt from my book,
“One Arm One Leg 100 Words, Overcoming Unbelievable Hardships”  

At times, she didn’t even want to look at me or touch me. If she didn’t retreat into her room and slam the door, then I usually had to leave the room myself and leave her alone so she could let all of that pent-up frustration out of her system. I’m sure the neighbors thought I was beating her, it sounded that bad. It took a tremendous amount of energy for her to vent like that. It would take her days to recover fully from the outbursts that drained her body and her emotions. Sometimes I felt that it was my fault for letting the conversation get to such a point of frustration that allowed her to just snap like that. She couldn’t just stop this outburst of screams once she got started. It had to run its course.  

In fact, it might have actually even been therapeutic for her to vent like that. I didn’t really know if it was or not. I just knew that I had to try harder not to let our next conversation get out of hand again. In my own defense, however, the conversations that we were having were necessary ones. They usually involved changes that needed to be implemented. I would give her my reasons, but she typically didn’t agree and couldn’t articulate why. When I would sense that she was heading towards another emotional outburst, I would stop the conversation, and change the topic.  However, that did not work most of the time.  

Imagine trying to discuss something very important with someone and not being able to say a word. Then knowing by your silence that you were going to lose something very valuable. You felt you were losing it because you were not able to state your case or speak your mind. Then to be told that we were not going to discuss this anymore because, “you are getting upset and you can’t be understood.” If that isn’t hell, then I don’t know what is. They say (whoever they are), that the only thing that separates us from the animals is our ability to speak and communicate with each other. In a way, a part of her humanity was taken away, and she was very upset about it.  

One way that I attempted to survive those difficult days was to travel on some weekends to my cousin’s and uncle’s homes that were located in different states. I hadn’t seen any of them in years, and it was a special treat for me to get away from my reality and share my feelings with safe people who were not a part of my situation back home. Charlene needed the break away from me also. She was naturally self-absorbed into her own problems. For her, no one else’s problems were more important than her own. This is normal behavior for a stroke survivor.  

Back home when Charlene would attend her stroke support group, I would also attend my caregiver’s support group. It was there I learned that I needed to take care of myself in order to take care of my wife. The caregivers would meet in one room and the survivors would meet in the another room. Both groups would complain about each other’s group and would share their horror stories with anyone who would listen.  

I remember back in those days that Charlene and I would often get into angry shouting matches with each other as our patience would wear thin. I am so thankful that those days are long gone and we now finally like each other once again.

By Guest Blogger: Dave Nassaney

Dave Nassaney, Author, Speaker, Life-Coach, and Host of Dave, The Caregiver’s Caregiver Radio Show, a show for caregivers who are burned out yet his most important role is Caregiver to his lovely wife, Charlene, for over 21 years.

His website has been developed to help caregivers overcome obstacles, adversity, and burnout, as well as just having a place to rest, relax and recharge their batteries. Please consider taking a coffee break now, and allow this site to encourage you in your difficult journey.

Dave, The Caregivers Caregiver

Categories: Personal Stories from Caregivers, Caregiver Burnout

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